22 October 2015

Still Alive & Other Stuff

I got a bit overextended in my obligations.

I have returned.  Treatment goes well, and I am have consistent improvement with the Stricker Medical Group in California.  I see Nurse McElroy who has been providing great care and takes an intellectual and evidence backed approach to treatment.

09 April 2015

Joni Mitchell and the Holman Foindation - We Help Each Other.

"A growing list of scientific studies proves that Morgellons disease is real. (1) At the recent Morgellons Medical Conference in Austin, TX, scientists from around the world presented evidence substantiating Morgellons disease to be a true medical illness and identified bacterial pathogens involved. "These patients suffer from a miserable chronic illness, and the medical establishment's response is to kick them in the teeth," said Dr. Raphael Stricker, a San Francisco internist with over 100 Morgellons patients in his practice. "The sad part is that when these patients are treated properly, they can recover."" 

That was from WTRF 7 News published on Apr 07, 2015.  Here's the full article with credit to PRWeb for the original report: Joni Mitchells Morgellons Battle Aided by Research from Charles E. Holman Morgellons Disease Foundation.




Morgellons Disease Related Journal Articles - links provided

For the medical nerds and researchers out there, I'll be posting full text journal articles which cover something relating to Morgellons Disease.  Discussion is welcome.

Phagocytosis of Borrelia burgdorferi and Treponema pallidumPotentiates Innate Immune Activation and Induces Gamma Interferon Production

Morphological transformations in a dually thermoresponsive coil–rod–coil 

Keratin Filament Suspensions Show Unique Micromechanical Properties



I hope everyone has a beautiful day with goodness and good surprises!

03 April 2015

Huffington Post With a Better Treatment of Morgellons Disease

Blog reader Dr. S.T., Ph.D. emailed the following story to me.  It's a well written and well reasoned piece.

Joni Mitchell Suffers From Morgellons Disease -- And Yes, It's 'Real' - http://huff.to/1BWrebn
(Full length link here)

Here's the letter I sent to the writer on 4/3/2015

Dear Ms. Melnick,
Thank you for the sensitive and well written piece on Joni Mitchell's recent hospitalization. With any luck, others will recognize the wisdom to your insight about moving past the threshhold question about the origin of the disease/disorder.
I wanted to bring a couple things to your attention related to your article. 
- Stanford University psychiatrist, Dr. Edward Kilbane, joined the Medical Advisory Panel to the Charles E. Holman Foundation, in part to help correct the misunderstanding of Morgellons Disease as purely psychosomatic.

www.thecehf.org/about-the-charles-e-holman-foundation.html
- Several university programs and students study Morgellons Disease as an infectious disease.  (See University of New Haven, University of Oklahoma)  At least one researcher in New Haven is writing a thesis or dissertation on it.
- German clinics gather data and report a co-infection with Lyme disease (see CEHF conference agenda) and sypathize with Morgellons Disease patients in the United States.

Additional links and information can be found on the-morgellons-lesson.blogspot.com.
Thanks for your time,
--Edward